Happy One Month Birthday Baby Boy
Today our son turns one month old! There were days when I was still pregnant with him that we were not sure he would be alive to see this day. God, has blessed us. He is here. He is perfect. He is fighting the biggest fight of his life. Just as sure as the H (home) word was mentioned to us as a possibility in a couple of weeks yesterday, I in turn, got the phone call at 2 a.m. this morning that his heart is struggling. His heart is working so hard to keep going. It is a delicate balance. One day everything looks picture perfect and hours later it all changes. I am working on not looking to far down the road, one day at a time, one hour at a time, one prayer at a time. Today our son turns one month old and the alternative makes me realize that I/we can do this. Even though there will be many tears through out this, many angry days, sad ones and joyful ones. I do believe that God has a plan for us and for our son and as we wait to learn what that plan is, I am finding a patience I have never, ever known. I am learning what is really important in life. I laugh at what people complain about because all I have to do is walk into this hospital and look to my left and look to my right to see babies on life support and I find there isn't much to complain about. I am forever changed by this beautiful boy God has given me. I know my husband is as well. Actually, I am pretty sure a lot of people are changed by him. I do know that is part of his purpose here on Earth. He is one month old today. My, how our lives have changed in one month. There is a beauty in all of this that comes with seeing just how precious life really is. When I see him smile (most likely from gas =) I see beauty. When I look at his scar where he was cut open at 4 days old, I see beauty. When I see his strong Daddy holding him, I see beauty. When I see life at it's most fragile, but hanging on, I see beauty. In a world full of mass chaos, I choose to find the beauty in it. This does not mean that I don't have awful days, today has been a day of waxing and waning through tears and hope. Just as his life is a delicate balance, so are my emotions. However, when I walked out the door this evening to go reserve my room at Ronald McDonald house for however much longer we will be here and felt the cool air on my face, I felt a peace wash over me, truly I did. While some days that falters, I choose to look up to the sky and see the beauty. There lies my Grandma, my Grandpa, baby Tadem and God surrounding me with love and strength when it is lowest. I hope that anyone reading this will choose to find the beauty that is this life. Tonight, won't you stop doing the laundry. Leave the dishes until later and instead get down on the floor to play with your children. Smell them just once more as they lay peaceful in their beds. Then sit and snuggle on the couch with your partner. These are things I would give anything to have right now. It is nearing six o' clock as I finish this post and I am in a hospital by my sons bedside and what I wouldn't give for us to be home doing dinner, baths and bedtimes. Remember the little things my friends. Remember what's important and when you feel frustrated, as we all do, dig deep and see if it matters in the big scheme of things. There you will find your greatest life lessons.
Thank you Paxton for teaching your MaMa the most valuable lessons she will ever need in her life. You are amazing, beautiful and ever so strong.
Happy One Month Birthday To The Biggest Fighter I Know! He WILL do this and we will be there every step of the way. How proud you make us son!
Comments
I have been reading your blog for a while now, and while I don't comment often, I sure do pray a great deal for you, your precious son and the rest of your family too! Thanks for sharing your life, and allowing me the opportunity to pray for you guys!
Tonya
It is a difficult road for sure - having a child with heart problems - but abundant blessings are in store.
Lynnette
I am Lynnette's mom, Linda. And as you said your life is forever changed because of your son,....Lynnette's life, her husband's and children's and my own as well, have been forever changed too, because of our trials.
God has His plan and His purpose for everything, and we may not always understand, but we can rest in Him, and know that He will work it all together for our good.
He is the one that holds our hand and walks beside us,...and never leaves us alone.
There are many joys along the way. I loved how you encouraged everyone to enjoy each day with their children, and to take the time to do all of the things that you are longing to do.
Your baby is precious.
Linda @ Truthful Tidbits
I"m sorry to hear Paxton is still on such a roller coaster.. I am praying for you and your family.
My prayers are with you.I am familar with what you are going through. Although I did not experience it, my daughter Faith was diagnosed inutero with HLHS. We were a week shy of her being born by c-section when she was stillborn.
Happy One Month Birthday to Paxton!
May the Lord touch his sweet little body and bring complete healing.
Blessings,
Karen
Noreen
My fiance was born with only half a heart (his condition is called Pulmonary Atresia with Intact Ventricular Septum - quite a mouthful!) and he had to have open heart surgery when he was a newborn. He now leads a relatively normal life, and had a test recently to find out if his condition is genetic (it's not).
God bless
I pray for you all.
Sara xx
I'm going to read your older posts now. Oh and I found your lovely blog through Lynnette's Getting to Know You.
I am here from Lynnettes Blog...Wanting to support you in your prayer requests..My husband and I have lost a son at three months and feel your pain deeply. But you are on the right road...We all could stop and remember what is important and how BLESSE we are...We don't deserve to live and YET Jesus gives us each day..What a blessing it is!..So along with you and yours I will grab hold of this day and rejoyce with you!..I am a little sad because my BABY, is leaving for COSTA RICA for three months today..and it hurts..But the focus should be life and the work for Christ she is able to do..not my missing her! We rasied her to love the Lord and she does!..What a Gift to her dad and I...So anyway..Blessings Dear ones in Christ..Be brave and Keep looking at His hand in this and He will lead you no matter the path...
~Bethany
((hugs & blessings))
Sarah @ ButterflyChic
www.sayrahterry.blogspot.com