Happy One Month Birthday Baby Boy
Today our son turns one month old! There were days when I was still pregnant with him that we were not sure he would be alive to see this day. God, has blessed us. He is here. He is perfect. He is fighting the biggest fight of his life. Just as sure as the H (home) word was mentioned to us as a possibility in a couple of weeks yesterday, I in turn, got the phone call at 2 a.m. this morning that his heart is struggling. His heart is working so hard to keep going. It is a delicate balance. One day everything looks picture perfect and hours later it all changes. I am working on not looking to far down the road, one day at a time, one hour at a time, one prayer at a time. Today our son turns one month old and the alternative makes me realize that I/we can do this. Even though there will be many tears through out this, many angry days, sad ones and joyful ones. I do believe that God has a plan for us and for our son and as we wait to learn what that plan is, I am finding a patience I ha
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My little guy has HLHS too. He is 20 months, had the first 2 surgeries, and is now awaiting a heart transplant (as soon as he is sick enough, sigh).
We too are away from our family, so I know how aweful you feel when you send them home :(.
If you ever want to chat or have HLHS questions, check out Owen's blog and my email is on the upper-left hand corner.
Andrea
http://owensheart.com