Tuesday, April 4, 2017

A long time coming....stream of consciousness

In light of my recent, very hard to post... post,  and all of the outpouring that came with it, I thought I should have a "stream of consciousness" post after almost another year of neglecting what I love to do the most; write.

I prepped this stupid...." BEFORE" pic hours before I actually hit the post button.

I had asked my trainer Brad if I HAD to do a before picture and he said I didnt have to do anything I didnt want to, but his look said sooo much more. I sat with that for awhile as minutes turned to hours. 

Was I ready to put myself out there on 'SOCIAL MEDIA' like that.... 

I was in truth; terrified. 

For those of you who knew my Dad, the Jenn today would be unacceptable to him. However; I do believe if the roles were reversed and he lost me, my sister or my brother that Dad wouldn't have had a leg to stand on. The suddenness of his loss rocked me to my core. And yet, I know it would have done the same to him. That loss is still just as raw today. Perhaps that is what happens when you have no warning and yet no warning is just how he wanted it to go down. Dad and I had a bond right out of the gate, like no other. I dream of him easily 3 times a week and it is vivid, raw and SO seemingly real.  In the months past, I have found those dreams haunting. Today, I find them motivating. After nearly two years of suffocating grief, missing the first love I have ever known,  I am choosing life. For my kids, for my family and for ME. I know Dad is smiling that giant smile we both share from wherever he is, SO proud that I have pulled myself out of this quicksand.

********I spent last night watching well over 60 comments come through my phone after posting what I consider a "fat pic" of myself and yet.... not one comment came through that didn't bring me happy, bittersweet tears. The truth is, I cried myself to sleep last night missing my Dad so deeply, and yet all the same, feeling wrapped in love and motivation. Overweight or not. I wasn't alone. We are all on our own journeys.... and that was SO comforting.

I also found myself realizing with a clarity that I haven't had in a looong time that being true to where we are in this very moment of life has the power to move mountains. I stood in front of that camera at my most vulnerable and put it out there for the world to see. Yet, the only thing in return was a stark reminder that there is power in numbers. That if we all just stick together we can change the world. Make it better for each other and our babies. Not one of us is perfect. We all have our demons and our stories, but being true to what brought us to this point has the power to transform us all.

There is a sign at Burn Boot Camp that says: Real Women Lift Each Other Up Not Tear Each Other Down...

Every day that I step foot in that gym, self conscious as ever, with beautifully fit bodies surrounding me; I remind myself that they too; started somewhere. Then I look at the other Moms still trying to find their footing outside of being just "Mom" and know I am not alone. I watch as full time working Moms and wives rush in last minute to change just before class starts and again, I am reminded that we are ALL taking it one day at a time. One workout at a time. One step at a time. Sure, our stories help make us who we are, make us stronger if we allow them, but they do not define us!!! The harder the fall, the greater the fight. Thank you to each and EVERY friend who commented last night. Each and every one of you will never know how much it meant to me. Truly! Many I know well, some I don't know at all and lots whom I haven't heard from in awhile. As crazy and daunting as this world can seem these days; there is still a community out there unwilling to let this shy, hermit of a girl go and for that I am forever grateful!!   #SOMMERstrong #burnbootcampnaples

Love and hugs
For the record, these babies above are worth it ALL!

PS~ see you in 30 days burn boot camp ladies and trainers! Couldn't do it without you. 😙

Wednesday, June 29, 2016

Sommer Elizabeths Birth Story 7 Months In The Making...

It's been over a year since I have last written. My how life has been so very heavy and utterly breathtaking in the same breath.  I have tried to write since this post and words have failed me time and again.

Today I will move forward.

Today my therapy begins again. My heart will open back up and do what it loves to do the most. Write.

Today I will share with you my daughter, yes DAUGHTERS, birth story. She deserves that.  He deserves that because there is no doubt Dad went to the throne and helped make this happen. 

(kelly goggin photography)
I knew that I was pregnant just mere weeks before losing my Dad.  Because I had lost a second trimester baby in the past, we decided not to tell anyone until we got a little further along. To say we were shocked at this ‘suprise’ is putting it mildly.  This baby would make five for us and holy hell five is a lot.  Some of us were happier than others, not naming any names David ;).

As I pushed through the first trimester suffering from pretty intense migraines, I would come to find out laying in a hospital bed that my Dad, the man who raised me as a single Dad for years, had died suddenly of a heart attack at the age of 58.  My world suddenly crumbled as I shared in my last post well over 365 days ago.  Suddenly I didn’t know up from down. Couldn’t eat. Couldn’t sleep.  My family and I lived in a haze for weeks on end.  We did everything a loved one is supposed to do when someone dies.  We went to the funeral home. Planned everything just so (with the help of hundreds of Dads people).  We saw him lying in a casket.  Gone.  Forever.  We kissed him. We talked to him. Laughed over him and loved the shit out of him in those final moments.  Stood in the auditorium, shook hands, hugged and thanked over 1000 people who came to say their good byes. Listened as he got a flyover from the Lee County Sheriffs department and watched as those thousands of people formed an aisle for his casket to be carried through and away forever.  This would also be the day standing in the middle of Estero High Schools courtyard; my Daddy’s second home, when we decided beyond the shadow of a doubt that should this baby be a girl (we never find out gender) that she would be named Sommer. 

Today, I cannot really say how I got through that.  The truth is, and I feel guilty saying this, but he was mine first.  Just the two of us growing up together. Him as a single Dad and me a wee little one.

I clung to that gift in those days and weeks after his passing. I still do. Perhaps that got me through or perhaps the baby in belly, who was so unexpected, was my lifeline to well... life.  I had to continue on for the baby.  For my other babies too, but without one in my belly I didn’t have to eat or take care of myself.  

Fast forward 7 long months of highs and the lowest of lows:

~Sommer Elizabeth West~ November 16, 2015

(just before leaving for induction)

We checked into the hospital on a Sunday night for induction due to uncontrollable high blood pressure.  I had my blanket made of all of Dads shirts tucked tightly under my arm.  I remember stopping just outside the hospital around 6 pm. I looked up to the sky, closed my eyes and just inhaled as fully and completely as I could.  I just knew I would never be the same the next time I walked out of that place. If I close my eyes I can take myself back to that exact moment. I wanted to suspend time. I wanted to remember that feeling of anticipation, gratefulness and joy after such heartache for all of eternity.

Every moment of those 3 days is so crystal clear to me, even now.  We anxiously waited in the waiting room for them to call us back. People would walk by, see the bags, my big belly and know what was to come. I was so proud.  So excited.  

Once I was all set up they started the slow process of induction.  The room was full of Grammys and Aunts so eager to meet this baby, however it was going to be a long night so they got hotel rooms nearby.  I slept wonderfully and woke up around 5 when they started my pitocin. Today was the day. I couldn’t even contain myself. 

I had decided after Dad died that I was going to try to have this baby with no epidural. This was going to be my last baby forever and ever and something in me really wanted to experience the entire process.  Besides,  nothing could hurt as badly as May 2, 2015.  I had mentioned it to my husband, but he wasn't to keen on the idea, so I just tucked the goal away in my heart, never losing sight of it.  Family arrived around 9 and we were all just so ecstatic. Because I didn’t have an epidural for the first time ever I was able to wear my own clothes, get up to walk around and even use the birthing ball which was awesome. Those were never options before due to an epidural and having to stay in bed.  I remember facebook blowing up the entire day with everyone wanting to know updates.  We had SO many people pulling for us on this day. Dads people. My people. Daves people.  SO MUCH LOVE for a baby not even born yet.

I don’t know if it’s because I get migraines or what, but labor was totally fine. I never faltered. I don’t say that to imply that I am so great, but it really was so easy for me.  I breathed through them and kept my eye on the prize.  My nurses were INCREDIBLE.  The best EVER!  They kept asking if I wanted anything and I kept saying I am ok.  Even when she looked at me puzzled and said that I should really be hurting from the contractions and was I sure I didn't want anything, I truly was fine. I am guessing I wasn't alone in this fight through labor.....

Everyone there knew of our story. Of Dads story.  They all asked about his blanket and then we heard about the bets going at the nurses station as to whether this was a boy or a girl. This baby though was going to take its sweet time.  I labored from 5 in the morning throughout the day until finally around 6:30 my OB came in to break my water. I remember him saying just before “if you want an epidural you need to get it now”.  I just knew I could do it, but fear was setting in. My family, bless their hearts, all just sort of sat there to scared to influence me.  So I looked to my nurse who had been with me through Talons birth too and asked what I should do. She was an old soul and she looked at me and said “look how far you have come! look how wonderful you have done all day long laboring!” and so, thanks to her empowering me, the decision was made.  My OB did not know I had chosen not to have an epi as he had left right after he did his business.  In years past, once my water breaks it’s game over and I just knew this too was going to be quick. Naturally a West baby decides shift change is a good time to make an entrance.  I knew within minutes that it was time. I told my nurse who was about to change over and she said to the new nurse “ he just broke her, she isn’t ready yet.” 
Oh’ but I was.  I began to panic and retreat inside myself because I knew this was it.  NO ONE could help me now. I had to do this.  Alone. Through whatever pain it brought me.  I kept saying out loud, the baby is coming.! It’s coming!  As I was crying out and the nurse saw me starting to push, she scrambled to call for back up and the room became a whirlwind of people.  They kept telling me to breathe. To hold on. BUT if you have ever had a baby with no epidural then you can understand there is NO stopping or holding on. I vividly remember thinking you can sit here with this utterly overwhelming force or you can push and get it over with. And so I did. I looked into my nurse Kellys eyes. They literally saved me as the sheer force of giving birth took over my entire being. She didn’t break contact once and her eyes seared into mine as if siphoning me the power to do this.  

The utter power that filled my body as I gave birth is like nothing I have or ever will experience again. I had zero control over myself. My body knew what to do and it was going to do it come hell or high water.  It took maybe 3 pushes and SHE was out. Born at 7:11 pm on November 16th, 2015 weighing 7 pounds 14 ounces and 19 inches long. 

I fell back onto the bed nearly passing out. My Mom told me after that she thought I was done for. I begged for oxygen. Could hear all of the cries and screams that IT’S A GIRL, but couldn't lift my head. I remember hearing Dave squealing through the tears that she looks just like Mason but the power that had taken over my body wouldn’t allow me to lift up and see her.  

Finally I was able to get my bearings as they laid her on my chest with a giant bow on her head.  One of my nurses Darla had made it for her before shift change and passed it on to Kelly before she left. She said she just knew it was a girl. 

My first look at her drew me deep into to her eyes as she looked up to me.   I remember mumbling that they were so big.  It was like she knew already what a gift she was and as her eyes bore into mine she began healing my broken soul.

I was in complete awe. I  had a baby GIRL and she did look just like Mason.  Sommer (after Dad) Elizabeth (after my Grandma who became my mom once my birth mom left us) West. I just stared in utter disbelief. I cried. We all cried.  I remember looking to my Aunt who was laughing and crying at the same time and saying “she came straight from Dad, she really did.” 

My brother later told me that as he waited outside my room for the all clear to come in that my Dr. walked out, saw him and said “man this is a good, good day!”  Oh’ how my heart swelled hearing that.  He has been with me through it all. All the migraines. The miscarriage. Paxtons diagnosis. Dad. He knew how much we wanted a little girl too. 

Delivering her on my own is single handedly the proudest moment of my entire life.  There truly aren’t words to describe how primitive and omnipotent that experience is.  

After all of the ooh’ing, awwing and stuffing my face (dear lord was I ravenous with no food all day) we were moved upstairs.  My nurse even got us the suite room after all we had been through the past year.  Sommer was already a princess.

She is very literally an angel from heaven.  I don’t have a single doubt in my mind that this baby that was such a ‘ surprise’ to us initially, was a part of our story all along.  It is no coincidence that after four boys, our little girl, who we would name Sommer came when she did.  I don’t know what happens to us when we die. I like to believe there is some form of heaven where we are reunited with the ones we miss and love most. I wasn’t brought up religious, so I don’t have any certain intrinsic belief in me, but I do know that we are powerful beings with the potential to mighty things.  My Dad did in life and in his death.  My daughter is the by-product of that. She is the very representation of the circle of life. That soothes me as I continue to navigate this grief.  

(thank you jaime for being there as she made her entrance and for always just getting it)

She comforts me every minute of every day. Her soul is so angelic and her demeanor heavenly in every sense of the word.

(kelly goggin photography)

I will never know why my Daddy had to go so soon. It hurts. SO badly, even now. I literally miss him more with each passing day, but in his wake he left me a perfect piece of himself.  A little girl who is Sommer genes through and through. Identical to her Mama who likes to think she is just like her Daddy.  Their stories will forever be intertwined and one day she will come to understand how special she really is, because you don't get a name like Sommer unless you are #sommerstrong.

(me on the left, sommer on the right)

Until we meet again, we will remain #sommerstrong Dad.  Miss you and love you morester.

and p.s.~ thank you.

Wednesday, May 13, 2015

A stream of consciousness on losing my Daddy...

I will never forget where I was or how I felt in the moments leading up to “that moment”.  The suck the breath right out of your very body, suffocating, life will never, ever be the same “moment”.

As you may or may not know, I am pregnant. With #5! I know, holy shit right!  I thought that very same thing.  Anyway, pregnancy causes my migraines to heighten. That Friday night my brother Adam had come over to hang out because he is awesome like that. I was sick as hell, but trying desperately to avoid the hospital...again.  I woke up that Saturday worse than ever. Dave had to work so Adam took me, bless his heart.  They drugged me and gave me fluids all the while my brother waited patiently beside me.  He stepped out to give Dad a call to see how things were going at the State meet that morning.  He did not answer....

When Adam came back in the nurse said I was still pretty dehydrated and they wanted to give me another bag of fluids so I sent Adam on his way telling him I would call Dave for a ride when I needed one.  

Awhile later as I am trying to get a ride home, but to no avail due to spotty cell service in the hospital, a random text comes through.  Without going into detail it said something to the effect of I am so sorry to hear the horrible new about your dad...etc. etc.”  Remember I had been sick for days and finally quite drugged so I wasn’t really grasping what was happening, however I knew immediately that something wasn’t right.  No one types that kind of text by accident.  The nurse came in and the look on my face must have spoken volumes because she asked if I was ok. I told her what had happened and she promptly took out her cell phone for me to use.  I called Dave and told him I got a weird text about Dad to which he played it off all casually saying he would call my Mom to figure out what was going on.  Little did I know what was happening behind the scenes. Well if you know how close my Dad and I were then you know I wasn’t about to just sit there, so I called my Mom. She answered and I could tell this was bad. She handed the phone off to my Aunt who was basically stalling by repeating herself so I didn’t have to find out alone.  Then just as “that moment” was about to hit me alone in a hospital room, Dave and my brother came barreling through my door. I knew by their faces that he was gone. He grabbed the phone from me, slammed it down and choked out “he didn’t make it”.  I looked from Dave to Adam, Adam to Dave and then the wailing began. Loud and long. I was screaming no, how did this happen. 
No one came in. Everyone there seemed to know and they allowed my crying to permeate the entire ER.

Almost as quickly as I started crying, I stopped. I checked myself out of the ER as the shock set in nearly immediately.  I can’t say I have ever felt this kind of shock. There has been bone chilling fear with Paxton and shock at his initial diagnosis but there was always a shred of hope.  My Dad had died. There was no hope and this shock was an altogether different thing.  My brain had a tremendously hard time really understanding that he was gone.  I knew that he was, people were telling me that he was, but my brain wasn’t making the connection. There were no more tears for days. Friends came over and later asked me if I remember seeing them at all I seemed so out of it. I remember the rest of that day and the days after as a blurry panning of a movie camera.  I saw what was happening but my eyes just scanned back and forth as I went through the motions. I wound up back in the ER that same night. The pain in my head so bad. The nausea and vomiting even worse. My dear neighbor drove me back and sat in the dark with me as I held a framed picture of my Dad to my heart for hours as they medicated and hydrated me again.  

I came home and forced myself not to think about it. I knew I could be nothing to my Mom, brother and sister who needed me if I continued to be as sick as I had been. My health was on a cliff and this news had the ability to fling me over if I wasn’t very very careful. 


My Dad... well, he was some kind of awesome.  A simple google of his name will tell you what a devoted Coach he was. I could write for hours and hours about all of the lives he impacted and changed. Adults and children alike.  l touched on that devotion in my funeral speech..   (pasted if here if you weren’t there)

Good morning!  As you may or may not know, I am Jennie, Coach’s oldest daughter. Oldest by a lot of years actually.  My Dad had me when he was just a young college student.  Oh’ but even then he was as incredible as he was when he left us.  He turned out being a single dad with a very young baby for many years.  I don’t know a lot of men at the age of 21 that want to take on raising a baby on their own.  I am sure it doesn’t surprise any of you that he did though.  You see, I knew my Dad before all of this. Before he ever made the newspapers or won the state championships. Just as he has watched me evolve over the years, I was able to do the same with him. It seems time did nothing but perfect him.  

Today will be one week exactly that I found out my father had crossed his final finish line.  The shock is still as heavy as the day I was told.  The ache grows deeper every day.  The reality that I will never see him again can be all consuming at times, but then I pause and look around at all of you here now or look on facebook or any given newspaper and see the articles, the tributes, the thank yous, the love and i think “jenn that's YOUR dad.”  Your dad has touched all of these hundreds of hundreds of people in such a profound way that years later they are coming in droves to say good bye to him and that sadness turns honor. I am honored to be his daughter.   I remember when I went to high school among these very walls that I never had a name, i was always simply “coach sommers daughter”  everyone called me that and that pride ran deep.  I was the daughter of the man that everyone loved... ok and lets be real, that many hated come speedwork time.  

I don’t know why my dad was taken so soon.  I will never know.  I only know that he spent his entire life making sure Adam, Ashely and I turned out to be good people.  Kind people.  Tough people.  People who worked hard. Knew that things could always be so much worse.  I never understood when I got sad or frustrated why my dad would firmly say “ you think you have it bad Jennie, there are kids all over fighting for their lives in hospitals...” and he would let that simmer.  It sunk in and many, many years later I would come to find out just exactly what he meant when I would look at my own son fighting for his life in a hospital.  He was preparing me all along.  I can stand up here today and speak in front of you because my Dad prepared me for anything that life throws my way. I can still hear him saying “you gotta hit the curve balls bean.”  

Daddy, wherever you are please know that I love you “MORESTER” and while you would always reply and i quote that's impossible, there is just no love like a daddys little girls love.

I can only hope I made him as proud as he makes me.  I hope I can be half the parent to my children that my Dad was to me.  I hope that his legacy lives on in all of you. He may be gone, but the work, the time, the effort and the love he put into us is not.  He has been preparing ALL of us all along how to be Sommer strong.  

Time has now turned into two phases. Before and after. Before I lost my Dad and after.  My thoughts continually rush in and each one now holds a before or after on the end of it. Oh’ look there is where we had that race we all went to “before” Dad died.  Or I was driving down this road in this very spot when that song came on that I sobbed through “after” Dad died. Before. After. Before. After.  I presume this will fade as time marches on.  I presume this fog that I am constantly living in will lift. I pray the pain will ease, because it is so very, very heavy.  I try to continue because I know he wouldn’t want us to roll over, but getting out of bed is hard.  I just want to lay with the shirt he died in wrapped around my neck for all of eternity, but I can’t because I have 4 little sets of eyes depending on me to be ok.  Learning from me, watching my every move as I navigate through this grief.  I think of how he would want me to present myself and I do it, for him, and then when my babies are all tucked into bed I retreat to my room and fall apart.  I cry endless, hot, wet tears full of longing for a simple chance to say good bye. To tell him I love him.  Just like all of the quotes tell you to do...  

I know he knew though. I know as he took his final breaths that his wife and children were what was on his mind. I know this beyond the shadow of a doubt. After his first heart attack he would always tell me “all I want is to be around long enough that my children will be old enough to be ok.”  Over and over he would tell me this. My Dad and I had a sort of a mutually morbid way about us.  I think perhaps watching my Grandma (his mom) die a long, slow death from Leukemia grew that in us.  I can remember having conversations with him about how we wanted to die. Dad always said fast. He didn’t want to suffer and I would always say no Alzheimer's, I couldn’t imagine forgetting him.  We would go back and forth but the conclusion always remained the same, I want to make it until I know my kids will be ok.  His wish was granted.  We all will be ok.  As hard as it seems right now, I know that we will be ok. All of us. And his wish has now become mine for my children.

The last newspaper count was 1,800 people that attended his service.  That’s one thousand eight hundred people!!!  I don’t think I have even encountered that many people in my lifetime, let alone made such an impact on them that they should all want to come say one last final good bye. Many people have told me they are changed because of this.  I think anyone at his funeral could look around and think how few people there are out there as selfless as he.  So giving. So kind. He may have only been granted 58 years, but I’ll be damned if he ever wasted a single day of them.  Not a single day went by that he wasn’t helping, motivating or pushing someone to be better than they ever knew they could be.  He gave so much of himself. The man never slept.
“I will have plenty of time to rest when I am dead.” He said it all the time. Someone wrote somewhere to him “Rest Easy Coach, you deserve it,” and I will be damned if that ain’t the truth.

I remember seeing him the Friday before the service. We had a private family viewing.  I was not in favor of seeing him from the start, but it isn’t all about me, so I lost that battle. In the end, it was a battle I am glad I lost.  I will never forget the first glance at him as the entire back of my body clung to the wall for support.  I hesitantly poked my head around and nearly fell to the ground.  I thought I had prepared myself. I had not.  I looked to my brother, eyes as wide as saucers I am sure, and he said to me “I don’t think I can go in there”.  I knew then we had to do this together. So I grabbed his hand and together we walked over to see our deceased Dad.  I reminded myself over and over again that “Dad” wasn’t in this body anymore.  It was just his shell. Oh’ but I loved that shell. That giant smile, he so graciously bestowed to me when I was born. His hands that rubbed my temples when I couldn’t sleep at night.  The ears he listened to me with for 35 years, bless his heart.  I wanted it all back. ALL of him.  I stood there, staring over him, completely shell shocked.  My Dad was gone. Forever.  I would never hug him or talk to him again.  I then sat in the chair and the shock began to dissipate into loud, gut wrenching sobs.  My Daddy was gone.  

Eventually my sister and I went back up to his casket where together we held hands and touched him.  He was cold. I expected that, but once we got the initial touch over with we bathed him in love. Talked to him. Held his hands. Rubbed his face and sneakily wiped the stupid lipstick off his lips.  He would not have been cool with that lipstick man.  

In the midst of our sadness and deep grief, we laughed.  Saying he needed bronzer. Saying he didn’t smell like stinky, sweaty Dad, to which my husband offered to put one of his shoes in the casket.  We joked that we kept waiting for him to pop up and say “Ha, just f*&ckin” with ya!” because that’s my Dad.  He was funny. He was perverted. He joked constantly and if he could have popped up and did that to us he SO would have. We said we wouldn’t even be mad.  The humor sneaking its way into the sadness was exactly what he would have wanted.  There is always a reason to smile and laugh.  He left us with a lifetime full of laughter, funnies and above all....LOVE.  

Saturday after the service as they asked us to say our final good byes, I panicked. Suddenly this body that terrified me at first was my only lifeline to Dad and I didn’t want them to take him away. I laid on him and sobbed, knowing this is the last I would see of my Daddy in this lifetime.  That hurts to a depth my writer self doesn’t have words for.  

As the day came to a close and people told me how strong I was, how proud he would be, I began to realize that his body was not, in fact, my only lifeline to him. It was actually very much the opposite.  Everything he taught me through the years was. The wisdom, the love, the strength, the humor, the kindness. All of those things are my lifeline to Dad and they can never be taken away. Continuing to live the life he adamantly instilled in us is and always will be the final, never ending connection to the single, greatest man I have ever known...

"MORESTER" forever and ever Daddy!

"Jennie Bean"

Thursday, February 5, 2015

Wowww.  It's been since November.  I would be surprised if I had any readers left, but I am a Mommy first.

I have spent all five days of this month, February, "heart month", CHD Awareness month, thinking about how I want to address the significance of it without sounding redundant.  If you have read my blog for any length of time, you have seen the many posts about Paxton.  His journey. His fight. His stunning bravery, of which I don't know that I would have in his shoes.  I have written about it all many times.  To me though, there is nothing redundant about it. Nothing redundant about living day to day wondering if he will wake up tomorrow, because guys, that is our reality. Panicking if he oversleeps. Holding my breath as he goes to ju jitsu and attempts to be a normal child, never quitting, not even for a second, while I sit and watch his lips turn blue as he exerts himself.  Waiting. Just waiting for the ball to drop.  There is nothing redundant about being a Mom to a boy with half a heart.  There is nothing redundant about being a Mom to a child with cancer. Or liver failure. Or SCID (Deklan and Jenna, I love you and I have never even met you, but I will. I promise you that.)

There is NOTHING redundant about being a Mom to a child with special needs.

So I will not apologize or hold back my shouting from the rooftops that tomorrow is WEAR RED TO SUPPORT AND RAISE AWARENESS FOR CONGENITAL HEART DEFECTS!!!!! I will not shy away from asking you all to join us in doing so. I don't care if it's a sock or your best pair of red granny panties, just please support all of us on this journey.

1 in 100 babies are born with a congenital heart defect. More than all childhood cancers combined. NOT that it matters one iota which disease is bigger or badder. I am simply stating how prevalent CHD's are and yet so few know about them.  I, for one, can come forward and say I didn't know jack or shit about congenital heart defects until I was laying on that ultrasound table and the tech said "Jen... there is something really wrong with your babies heart."  Til the day I die, I will never forget that feeling. And until the day I die I will never stop praying and begging and hoping, for not only my own son's life, but for all of these children who have to endure so much so young.  I don't care what from.  These kids. God are they brave.  We adults, wouldn't stand a chance against them.

Tomorrow though. Tomorrow is Paxtons day. Kians day. Mateos Day. Ashers Day.  Graces Day. Grahams Day. Jacks Day. Sadies Day. Zoeys Day. Izaaks Day. Bodies Day.  Olivers Day. Emmas Day.  The list, my friends, sadly, goes on and on.  Among those I listed are several angels.  There are many, many more CHD angels among us. Gone far, FAR to soon, having fought hellacious battles in their short time here. Those of us who still have our warriors here, are the lucky ones. Every single day that he is here, we are lucky.  I never lose sight of that.

Paxton has gotten to the age where he has begun to understand that he has a "special heart". Oh' just let me tell you all the ways that he does not like it. He despises being different than his brothers and wants to know "why he is the only one in the family with a special heart??"  Why he has to wear a chest guard. Why he has to take medicine. Why he has to get pictures of his heart.  We answer the questions as they come.  We stress his awesomeness daily. He knows his bravery.

Friends, take the time to read that article a Mom posted about CHD's that most scroll on by. If it was your baby.... you would.  Wouldn't you?  I think that's why I have come to understand any battle, CHD or otherwise. Whatever the "diagnosis", I grasp that it is still someones baby and it just kills my Mommy heart.  I recently read a Huffington post article that simply said " I get it, I am a Mom." And that is how I feel anytime I read of a child being diagnosed with annnnyyythingggg. I. GET IT.

It is my greatest hope that all of these children come to know how truly special they are. That they know their battles are not fought in vain.  That we are all here to pull for them, pray for them and support them.

RED tomorrow for them!!!!!!

Love and massive heart hugs~

ps~ to those who simply shared my FB status yesterday, and there were several of you. thank you!!! that is how the word is spread.  how the support is shown. how my boy is lifted up. xoxo

Tuesday, November 4, 2014

Talon Turns One.

We all know that when we go through something hard and ugly, scary and desperate that it changes us.  It opens our eyes, makes us appreciate things in a new way.  I had a sick baby. I spent a lot of time in a hospital with him. I watched him fight for his life.  Then I had another baby. A healthy one. I knew things would be different with him in that I would be experiencing it all in a whole new light .  What I did not know is just how deeply that would run.

My baby is one today. 

It has hit me in such a profound way.  This past year has been a bit surreal.  Sure there were days where I lost it and couldn’t keep my head above water, but I never let it last for long.  Mostly though, all of this past year was mother f ing incredible.  The middle of the night feeds. The sheer exhaustion. The nursing round the clock. The still nursing one year later.  The joy my boys all have for each other. The way any one of them will light up when they walk in and see “TT”  or “Chumpy Wumpy”.  The way this family has effortlessly expanded to let in this little boy who completes us.  

Talon is breathtaking.  His eyes, his smile, his laugh, his expressions, his raspy little voice, his laid back, go with the flow as long as he’s got us around self.  I didn’t know it would be this amazing. 4 boys is a lot, but somehow this little boy of ours makes it easier. Better.  

We laugh with and at him.  We all cheer when he says something or claps his hands.  The boys squeal my name “MOM!! TT, COME LOOK!”  when they catch him trying to walk.  We all dance around him to which he will immediately dance right back. The boys are to old for Mickey Mouse, but they watch it because “TT” loves it. They play with “baby toys” because it makes Talon happy.  I find them all in his crib every morning playing with him even though I have told them not to many times.  The risk is worth the love I suppose.  

I have spent this year relishing every single moment. Relishing to a fault if that’s possible. Who knew one could “over relish”, but leave it to me to do so.  I have had to learn to try to tame my emotions. To allow this to happen and be ok with moving forward.  To be ok with him growing up and not being my baby forever.  He will surely grow up fast with 3 older brothers, as much as I fight it.  I go back down memory lane all the time and sometimes that is hard. 

I am not ready to let go of this last year.  It was that good.

I guess that’s to be expected when the years prior were so hard.   Oh’ but watching him evolve into the little boy he is becoming does me in. Hits home just the same as laying in bed with a newborn curled into me. 

I am reminded daily through my children that life is such a miraculous gift.  We can take nothing when we go people. Just the love.  And I am so grateful for this little boy who came in and healed this family so unknowingly.  His little spirit is the balm for our wounds. He doesn’t know it. He won’t know for a long, long time what a gift he was to all five us. Now a party of SIX.  

Happy, HAPPY birthday Talon. You are absolutely dreamy inside and out.  Please never stop laying your head on my shoulder for random snuggles or laughing when I kiss you endlessly.  Always smile at those big brothers of yours who adore you and may you continue to become as wonderful as they are.  You, little boy, are wrapped in love for life. I pray your future is as bright as those baby blues of yours!  

One year ago today you came into our world and changed it forever. 

“Luh you T”, 
Mommy, Daddy, Austin, Mason and Pax


8 teeth
Still crawling. Walks along things. Tries to stand alone.
Still nursing. REFUSES a bottle.
Sleeps through the night.  
Loves a bath, a walk, going for a bike ride, when you pretend to chase him and Mickey Mouse. 
Will eat ANYthing. Favorites being hummus, eggs, cottage cheese and broccoli. 
Drinks from a straw.  
All time favorite thing to do is dance. Has been since I first video’d him at 6 months old.  Dances to music, tv, in the car or to nothing at all just to see us all giggle and jump for joy. 
Loves books. Loves following brothers around the house.  Opening cabinets and pulling everything out and yes....playing in the toilet if the door is left open. 
Says Ma Ma, Da Da, Uh Oh and just recently Dog.  

(all photo credits go to our babysitter, which is a word I so dislike because she is so much more to our family: Miss Jordan Zuccarello.)

My Peeps