Wednesday, September 9, 2009

Swim For Paxton

Yesterday, we had another appointment with our specialist here in town. Paxton is hanging in there despite his very poor heart. The fluid that accumulated last week has remained unchanged, thank God, and he may continue to grow in my belly for as long as he can handle it. He was practicing breathing, which I am told is a good sign that he is not in any distress. He weighs 5 pounds 5 ounces and is approximatly 17 inches long at 34 weeks!!!! He is a big boy and I am so grateful for that, I cannot stress how the weight and time in my belly will only help our son once he is born. I go back to St. Pete on Monday for a recheck with our fetal cardiac specialist. We will decide on an induction date then! Even with all that is surrounding our little mans birth, I can truly say that I am getting excited to meet him. I pray that all he has to go through in his ever so young life goes as smoothly as it possibly can for him. My heart aches for him that he will not be home with us and will instead be hooked to monitors and tubes, with iv's and possibly breathing machines laying in a plastic isolette with his chest having been cut open... I am learning to accept that I must hand my son over to a power higher than myself and pray for the best outcome.

Today I learned that two of my dear friends have in fact set up a fundraiser for our boy! It has been finalized and I am so incredibly grateful. Everybody has busy lives with families of their own and I understand that, so the fact that there are people out there willing to carve out time and energy to do something so amazing for our family is such a gift. As I have already said before, thank you will never be enough. When I am feeling my lowest, I just think of the angels God has surrounded us with and I know I am not alone. As lonely as I may feel at times, we are blessed to have amazing friends willing to show us that.

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Here is the flier that was made up!

SWIM FOR PAXTON!

Paxton West has been diagnosed in utero with Hypoplastic Left Heart Syndrome. He will require 3 open heart surgeries by the time he is 2 years old, the first of which is happening within days of birth.

His parents, Dave and Jennie West, are local residents of Naples, FL.

The expenses for medical bills, travel to St. Petersburg, babysitting for their two boys, 3 & 2, and lodging while in St. Petersburg for the surgeries are insurmountable.


Let’s come together as a community and help this local family!

When: Friday, September 25, 2009
Where: YMCA Norris Pool
Time: 6-8pm
Admission: All Donations Accepted At The Event Or May Be Sent To
Jennie West (Memo Line: Swim For Paxton)
2316 Pine Ridge Road
Naples, FL 34109

Questions To Kim: swimkim4@gmail.com

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Words escape me....




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1 comment:

Hilary said...

Hey Jenn,
Just stopping by to let you know I'm still here and still praying. I pray little (or shall I say big??) Paxton keeps growing big and strong like he is! That's awesome that he's growing so well.
I'm so happy to hear your friends are doing a fundraiser to help you out. I hope it is a huge success!!!
I wish I didn't live so far from you...
You are in my heart and prayers, dear.

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