As the days roll closer to my boys surgery, I find myself avoiding calendars and knowing the date. I just want to pretend it isn't as close as it is. I woke up yesterday in a foul mood, it happens sometimes. I was/am scared, even a little angry and it was obvious. Anyone who knows me well knows that my anger turns very quickly into tears. I walked over to Paxtons cradle, stared at him and sobbed. He's so gorgeous and perfect and I sobbed for all that he has been through, all that he is about to go through and all that I cannot change. My heart overflows with so many emotions for him, above all love. He's my baby. He's 17 pounds, big for him, but still a tiny little man. He's so innocent. With zero idea what lies ahead and while that is essentially a good thing, I just feel like I am a bad Mom for having to hand him over to have his chest opened up again. The bones that surround his little heart are held together by wires that will be clipped open so doctors can once again operate on his heart, which by the way is the size of his fist... They will wire him shut again after that until next time. Yes, he still has another one after this. Yesterday, it just wasn't fair to me, today it is what it is. I fluctuate constantly and I imagine that's normal. I do what I can to keep busy. My house is spit shined clean. I couldn't stop this morning. He was napping so I cleaned and cleaned because if I kept cleaning then dangit I didn't have to think. Sometimes, I just want to shut my mind down, if only for an hour. I cling to him, smother him in my kisses and love. Wanting him to know j.u.s.t h.o.w. deeply in love with him I am. He feels it, that I do believe. For all that he has and will be forced to feel in his mere six months of life, if I can make him smile, giggle and calm then I guess I am doing what I am supposed to do. As helpless as I feel, when he follows me with his eyes walking around the house and when he cries when I leave the room I realize that while I may feel out of control in this situation, he is just as in love with me as I am with him. That, above all makes this all ok. He still loves me. He knows I would change it in a second if I could. He, my old soul, knows more than I do. It's almost like he knows how this will all play out. I look into his deep, knowing, big blue eyes and it all melts away. Its just the two of us doing our best to trust in the road that lies ahead.
Happy One Month Birthday Baby Boy
Today our son turns one month old! There were days when I was still pregnant with him that we were not sure he would be alive to see this day. God, has blessed us. He is here. He is perfect. He is fighting the biggest fight of his life. Just as sure as the H (home) word was mentioned to us as a possibility in a couple of weeks yesterday, I in turn, got the phone call at 2 a.m. this morning that his heart is struggling. His heart is working so hard to keep going. It is a delicate balance. One day everything looks picture perfect and hours later it all changes. I am working on not looking to far down the road, one day at a time, one hour at a time, one prayer at a time. Today our son turns one month old and the alternative makes me realize that I/we can do this. Even though there will be many tears through out this, many angry days, sad ones and joyful ones. I do believe that God has a plan for us and for our son and as we wait to learn what that plan is, I am finding a patience I ha...
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Praying for you all!!!
You are both in my prayers as well as the surgeon who will mend your little sweetheart.