We are about a week out from Paxtons surgery. It is very apparent the stress it is beginning to take on my husband and I. We are both sensitive and on edge.  We are both...scared. Quite frankly, I am a wreck.  So while I have a lot to catch up on, I am going to go lay in my big bed with my little man and soak up every moment I can with him.  Tomorrow I will share all about our recent trip and Easter extravaganza, but tonight the tears have taken their toll and I am tired. Good night all!  I've got some cheeks to kiss and ears to nuzzle. I have the most amazing little boy waiting in my bed for me to spoon with and right now that is the only place in the world that I want to be...

*****
P.S. I want to say thank you to all of my dear friends who have reached out to me lately.  Just this weekend I opened the mail to a stack full of medical bills, but also to find a handful of cards for us as well. Gosh, they just lift me up. While it is extremely hard for me to get to everyone, it's a guilt I carry daily because I can't be the person I used to be that thank you carded everyone and returned phone calls. Just please know that your cards and kindness ( you know who you are) mean more than you will ever know. 

post signature

Comments

Lena Costain said…
Hi Jenn,

If you feel up to it, please give me a call so we can touch base before you head up...I can definitely offer you some positive encouragement about the Stage 2..by far the easiest of the 3 (we were in and home within 10 days)
April 4, 2010 at 8:39 PM
cici said…
Please rest assured little Paxton is in my prayers and he will do very well. This will soon just be a memory as he grows into a young man.
God is watching over your boy.
April 5, 2010 at 3:30 PM
Post a Comment

Popular posts from this blog

Happy One Month Birthday Baby Boy

Image
Today our son turns one month old!  There were days when I was still pregnant with him that we were not sure he would be alive to see this day. God, has blessed us. He is here. He is perfect. He is fighting the biggest fight of his life.  Just as sure as the H (home) word was mentioned to us as a possibility in a couple of weeks yesterday, I in turn, got the phone call at 2 a.m. this morning that his heart is struggling.  His heart is working so hard to keep going. It is a delicate balance. One day everything looks picture perfect and hours later it all changes.  I am working on not looking to far down the road, one day at a time, one hour at a time, one prayer at a time. Today our son turns one month old and the alternative makes me realize that I/we can do this. Even though there will be many tears through out this, many angry days, sad ones and joyful ones. I do believe that God has a plan for us and for our son and as we wait to learn what that plan is, I am finding a patience I ha
Read more

And he's off

Paxton is out of surgery and recovering. He is heavily sedated as of now, but all went well and doctors are happy with the repair. God is good! Prayers were answered. Today is a damn good, beautiful day. I will update more later. Thank you all for walking this journey beside us ! Update 8:10 am. Just got call they have made the first incision and are working through scar tissue now. He is stable and doing awesome. 7:20 am They have taken Paxton back to the OR. I will update when I know more. Please pray for my boy. ~j
Read more

Stream Of Consciousness

Image
I honestly didn’t realize until today why I have been the weepy mess that I have been these last few weeks. I thought I was tired.  I thought well you have five kids and lots to remember. I am prone to anxiety. I worry to much which is definitely nothing new.  I attributed the constant crying to all things other than the obvious, which after ten years one would think I would have down by now.   It’s February.   It is heart month and I don’t mean cupid.  It is real heart month.   The hearts who are sick, broken, healing, or in heaven… We honor, celebrate, recognize and weep over all things Congenital Heart Defects.  I used to be able to post a lot more about it.  I used to write a lot more about it, but I have found as time goes on that well… I don’t have a ton of time for it, but also I think I’ve been avoiding it as well… because after 10 years… words don't come to me like they used to…there is just no time line and I haven’t been able to sit down to write lik
Read more