Our Little Man's Second Journey










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Happy One Month Birthday Baby Boy

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Today our son turns one month old!  There were days when I was still pregnant with him that we were not sure he would be alive to see this day. God, has blessed us. He is here. He is perfect. He is fighting the biggest fight of his life.  Just as sure as the H (home) word was mentioned to us as a possibility in a couple of weeks yesterday, I in turn, got the phone call at 2 a.m. this morning that his heart is struggling.  His heart is working so hard to keep going. It is a delicate balance. One day everything looks picture perfect and hours later it all changes.  I am working on not looking to far down the road, one day at a time, one hour at a time, one prayer at a time. Today our son turns one month old and the alternative makes me realize that I/we can do this. Even though there will be many tears through out this, many angry days, sad ones and joyful ones. I do believe that God has a plan for us and for our son and as we wait to learn what that plan is, I am finding a patience I ha...
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Stream Of Consciousness

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I honestly didn’t realize until today why I have been the weepy mess that I have been these last few weeks. I thought I was tired.  I thought well you have five kids and lots to remember. I am prone to anxiety. I worry to much which is definitely nothing new.  I attributed the constant crying to all things other than the obvious, which after ten years one would think I would have down by now.   It’s February.   It is heart month and I don’t mean cupid.  It is real heart month.   The hearts who are sick, broken, healing, or in heaven… We honor, celebrate, recognize and weep over all things Congenital Heart Defects.  I used to be able to post a lot more about it.  I used to write a lot more about it, but I have found as time goes on that well… I don’t have a ton of time for it, but also I think I’ve been avoiding it as well… because after 10 years… words don't come to me like they used to…there is just no time line and I haven’t...
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And he's off

Paxton is out of surgery and recovering. He is heavily sedated as of now, but all went well and doctors are happy with the repair. God is good! Prayers were answered. Today is a damn good, beautiful day. I will update more later. Thank you all for walking this journey beside us ! Update 8:10 am. Just got call they have made the first incision and are working through scar tissue now. He is stable and doing awesome. 7:20 am They have taken Paxton back to the OR. I will update when I know more. Please pray for my boy. ~j
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