The Wild Wild Wests

My oh' my,  every day that I swear I will find time to sit down and blog time slips by at lightening speed. I wind up looking at the clock going when did it become 9 o'clock again!   Paxton is obviously home from the hospital and I truly apologize for not at least having stopped in to share at least that much with you.  He finally started eating three days into our hospital stay and just as I was about to completely melt for lack of car and its ability to get me my McDonalds diet cokes, we were discharged,  praise God. We even made it home in time for our Fourth Of July vacation week. And I do remember lying on the vinyl hospital couch absolutely positive that we would not be making it.... just as we have had to cancel two prior trips due to Paxtons health.  Not that I care, lord knows I would go to the ends of the Earth for my little nugget.  I am just so thankful we got to go and have fun. The boys. were. in. their. glory. *************************...

I can hear the chatter now about how long it's been since I have posted.  I like to think ya'll missed me enough ;)   I have been away from the computer for so long because I have been knee freaking deep in getting my sh*@t back together after two years of total complete chaos.  I am insanely type A when it comes to organizing and being on time and having it together only its kinda hard to have it all together when you have a special needs baby.  Lord have mercy just when you get it together you wind back up where you started, as in the hospital. Oh yes, we are camped out in room 561 here at All Children's Hospital once again. Only after being transported via ambulance of course because when Pax does it, he does it right! So here's the sitch.... Pax has not been eating. Eating is essential for him to maintain his weight while his heart works so hard. He is also a baller walker now and runs after his brothers stealing whatever it is they might have in their hands...