I Know! I Know!
I can hear the chatter now about how long it's been since I have posted. I like to think ya'll missed me enough ;) I have been away from the computer for so long because I have been knee freaking deep in getting my sh*@t back together after two years of total complete chaos. I am insanely type A when it comes to organizing and being on time and having it together only its kinda hard to have it all together when you have a special needs baby. Lord have mercy just when you get it together you wind back up where you started, as in the hospital. Oh yes, we are camped out in room 561 here at All Children's Hospital once again. Only after being transported via ambulance of course because when Pax does it, he does it right! So here's the sitch.... Pax has not been eating. Eating is essential for him to maintain his weight while his heart works so hard. He is also a baller walker now and runs after his brothers stealing whatever it is they might have in their hands...